Connecting useful datasets

There is huge potential in the ability to link data, allowing us to push beyond the limitations of individual datasets to explore sophisticated research questions, as we seek to deepen our understanding of respiratory conditions and their treatment.

BREATHE supports data linkage research projects in collaboration with Trusted Research Environment, SAIL Databank, who hold over a decade of experience producing pre-linked datasets according to researchers’ requirements.

“The Cystic Fibrosis Trust has partnered with BREATHE to enrich our UK Cystic Fibrosis Registry dataset, by linking de-personalised data from the Registry with NHS healthcare records. We are excited by the ability to improve the quality and quantity of data available, and further our aim of creating a resource that can answer any question about cystic fibrosis.”

Rebecca Cosgriff, Director of Data & Quality Improvement, Cystic Fibrosis Trust

Related Case Study

Driving new insights from the UK Cystic Fibrosis Registry

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Linkage with anonymised health records

SAIL Databank is BREATHE’s primary Trusted Research Environment, which brings services for data analysis, data hosting and sharing.

SAIL Databank hosts anonymised NHS Wales data, representative of the whole Welsh population. Secure data linkage within SAIL Databank allows the ability to follow the patient care pathway, providing a unique perspective.

Linkage with anonymised health records
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