There is huge potential in the ability to link data, allowing us to push beyond the limitations of individual datasets to explore sophisticated research questions, as we seek to deepen our understanding of respiratory conditions and their treatment.
BREATHE supports data linkage research projects in collaboration with Trusted Research Environment, SAIL Databank, who hold over a decade of experience producing pre-linked datasets according to researchers’ requirements.
“The Cystic Fibrosis Trust has partnered with BREATHE to enrich our UK Cystic Fibrosis Registry dataset, by linking de-personalised data from the Registry with NHS healthcare records. We are excited by the ability to improve the quality and quantity of data available, and further our aim of creating a resource that can answer any question about cystic fibrosis.”
Rebecca Cosgriff, Director of Data & Quality Improvement, Cystic Fibrosis Trust